HIPAA privacy rule fails to protect patients, hampers health research

A recent study conducted by Institute of Medicine (IOM) and sponsored by;

  • U.S. Department of Health and Human Services
  • Robert Wood Johnson Foundation
  • American Cancer Society
  • American Heart Association/American Stroke Association
  • American Society for Clinical Oncology
  • Burroughs Wellcome Fund
  • C-Change

shows that HIPAA Privacy Rule does not adequately protect the privacy of personal health information and hinders important health research discoveries. Well, this kind of defeats the purpose of implementing HIPPA eh?

IOM has also called on Congress to develop a new approach to protecting personal health information for research, suggesting that factors including privacy, data security, and accountability standards uniformly to information used in all health-related research regardless of who funds or conducts the research.

Should the existing policies remains in place, the committee recommends a series of changes to improve the rule and the guidance that the U.S. Department of Health and Human Services (HHS) gives on how to comply with it.

The original article can be read here.

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